A senator of state in California is proposing laws designed to offer more straight oversight over direct-to-shopper genetic testing firms.
The new laws, introduced by Santa Ana’s Democratic Senator Thomas Umberg, builds on efforts in the California Consumer Privacy Act to control the ways corporations can utilize data collected from genetic testing.
The CCPA regulates genetic testing corporations by allowing shoppers to request information on how their data is used and opt-out of any unauthorized purposes of their data or sale of that data to third parties.
However, the present authorization forms are complicated, and consumers typically don’t have a lot of clarity into what they’ve agreed to allow genetic testing corporations to do with the data, based on a statement from Umberg’s office.
Under Umberg’s suggestion, Senate Bill 980, DNA testing corporations must follow strict rules for authorization forms for genetic tests.
The measure develops civil penalties for firms that fail to abide by the provisions in the Act.
Maryland and New York have long had harsh laws regulating how genetic tests will be marketed to consumers on the books, and Illinois passed new legislation to tighten how genetic tests can be used in 2019.